Saturday, February 16, 2008

"Einstein Didn't Speak Until He Was Three"

My 18-month-old daughter has developmental delays in gross motor skills and expressive language. This is still not easy for me to say (or write), but it would be infinitely harder to deal with if not for my husband's attitude about the whole issue. He says things like "Einstein didn't speak until he was three," and "we already know she's different from other kids, the question is how much do we really want to worry about it." He says that society is telling us that there is something wrong with our child, but that she is going to develop just fine in her own time. She is just our little late bloomer he reassures me.
For a long time I avoided doing much research into what causes developmental delays. I think that I was overwhelmed enough just trying to process the results of her tests and then jumping all the hurdles that were necessary to get her into physical therapy. Recently I worked up the nerve to ask my daughter's therapist what causes these types of delays. The therapist said that there really isn't an explanation, some babies are just that way. So, I looked to the Internet. Surprisingly I didn't find a lot of info there either. What I did find didn't apply to my daughter, she doesn't have a genetic disorder and she wasn't born premature. I'm also pretty certain that she doesn't have autism either, given her social, emotional and receptive language abilities. I did find one article that said 8% of children from birth to six years have some type of developmental delays. For some reason I found that comforting, maybe she is not that different--8% seems like a pretty big number to me.
Before I had children and even after my first, I wondered how I would feel if I had a child that was somehow not "normal." I would see parents with children that had some type of disability or disorder and wonder if that changed how they felt about that child, and also if they felt closer or more bonded to their other children. Of course no one ever thinks that they will end up being in that situation themselves. But being on the other side of it now, I can honestly say that my daughter's differences don't change how I feel about her at all, and I don't feel any less bonded to her than I do to her brother. Sometimes it is difficult to be around other babies that are about the same age or even considerably younger than her, and see them doing and saying things that she can't yet. However when she does make progress or achieve a goal, it is so sweet.
My husband and I watched a lecture on PBS by the author of Go Put Your Strengths to Work the other night. The jist of it was that instead of focusing on your weaknesses and trying to improve in those areas, you should really be trying to find ways to play up your strengths and use them to your advantage. It made me think of our daughter and how we spend so much time worrying about what she can't do. I think instead we really need to celebrate her strengths and focus more on what a wonderful little girl she is.

6 comments:

graggirl said...

I think about this a lot being pregnant. I do not think I have it together enough to take care of a higher needs child. I know someone whose 7 yr old is in a wheelchair and is incontinant and I do not know if I have the required love in my heart. I have a box ready to ship of your light plates (no doll yet, at least Abby is at that forgiving age) and I threw the last copy of Brain, Child in there. There are a few really interesting articles on disabilities.
One other thing...I thought of you as I studied joints for my anatomy test. One of the best violist of all time I had very loose ligaments. He was the only violinist to be able to reach 3 octaves on a violin! Only because he had loose ligaments. Crazy huh! I also think the speech thing is overrated. Very overrated. I think that maybe with Abbby's ligaments she has needed to put a lot more developmental energy into coordination and movement and that the other will come. Hang in there! And maybe she will the be the kid that is so into expressing herself through art who you can sit and paint with!!!

Allison Slater Tate said...

I have been right where you are. After having an extremely articulate, precocious first son, my second son has definitely struggled with his speech and has some motor planning issues associated with it. It was so hard for me at first to try to determine if he needed therapy, because my husband and my ped both said we could wait. When he started grunting instead of trying to talk, showed frustration, and stopped speaking at school, I took action. He's doing a lot better, but he still sounds different and less intelligible than his peers, and he has a tendency to yell and growl when he is frustrated rather than relying on his words, and who could blame him? It is very,very hard. And yet I feel so lucky that this is ALL I have to deal with -- I have friends with babies and children with much bigger issues. Hang in there -- so much changes over the first five years, you have no idea what she will be able to do when she is in Kindy!

j said...

Melissa, you opened your heart and showed to everyone in this post. It was lovely and touching. Your little girl will do what she will do when she does it. It is out of your control, and that makes it hard doesn't it? My daughter has some issues that are hidden from the world, just something we deal with here at home. She is intelligent, sucessful at school, physically beautiful... But she has an issue that would surprise so many people. So we protect her, try to help her through in a positive way. And we love her SO much. Parenting is not easy. having confidence in my parenting skills is not always easy either. I don't want to let my kiddos down. Thank you for sharing about your daughter. I hope things go well with your sweet little girl as she grows and matures!

j said...

Sheesh, the typos and incorrectly spelled words! Sorry.

Unknown said...

wow nice one :)


keep on loving ur daughter as u and ur husband are the only pillars


rest all(including me) might just think about ourselves and our family

Unknown said...

wow liked ur writing

just keep on supporting your daughter as you and ur husband are the only pillars to support her.

Rest of all(includin me)will think about ourselves and their family


Again nice writing
regards
Vishal Hegde